PLEASE SIGN THIS PETITION TO HELP CURE SPINAL MUSCULAR ATROPHY, THE #1 GENETIC KILLER OF CHILDREN UNDER THE AGE OF 2.
We need your help to move landmark legislation through Congress that will allocate federal resources to non-profit and research organizations focused on finding a treatment and/or cure for SMA.
SMA is an inherited genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
SMA is the #1 genetic killer of children under the age of 2.
SMA is estimated to occur in nearly 1 out of every 6,000 births.
The gene mutation that causes SMA is carried by 1 in every 40 people or nearly 7.5 million American.
There is currently no cure, but the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders.
Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure.
http://www.petitiontocuresma.com/
I will not know if you signed this or not.... and even if I did know... I would not care if you choose not to.
I don't forward a lot of emails, because I don't like to bother people with sillyness...
Most of you know that Austin has SMA ...
SMA is an inherited genetic disease that results in loss of nerves in the spinal cord and weakness of the muscles connected with those nerves.
SMA is the #1 genetic killer of children under the age of 2.
SMA is estimated to occur in nearly 1 out of every 6,000 births.
The gene mutation that causes SMA is carried by 1 in every 40 people or nearly 7.5 million American.
There is currently no cure, but the National Institutes of Health (NIH) and the National Institute of Neurological Disorders and Stroke (NINDS) have selected SMA as the disease closest to treatment of more than 600 neurological disorders.
Researchers estimate that we are as close as only a few years away from finding a treatment and/or cure.
http://www.petitiontocuresma.com/
I will not know if you signed this or not.... and even if I did know... I would not care if you choose not to.
I don't forward a lot of emails, because I don't like to bother people with sillyness...
Most of you know that Austin has SMA ...
This is something VERY important to me...
PLEASE take some time and sign this... It isn't some fake internet thing... Its real
Its all online... and you can even block your name from being seen by visitors to the page...
PLEASE, help us find a cure!
Megan La Rue
Check out Austin's webpage:
www.caringbridge.org/visit/austinmichael228
Check out my MySpace:
www.myspace.com/hunkymonkeysmommy
www.myspace.com/photos_by_larue
Check Out the family blog:
http://elliott-paradise.blogspot.com/
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